Two hours. [background noises] [background noises] good morning the Senate Special committee will come to order welcome everybody. Welcome to the committees eighth hearing of the one her 18th congress about Drug Development for rare and serious diseases. As is the tradition of the committee, the aging Committee Ranking member, Ranking Member brought in this case will offer an opening statement. Thank you, senator. Thank the witnesses for coming and for all of the folks from around the country here today. There are over 7000 rare progressive and serious diseases known to man. It is estimated 95 black treatment. Yet in my time et cetera there is not been one Senate Hearing to examine promising therapies for people with rare progressive and serious diseases. The room is packed with people, patients and caregivers that live in this reality every single day. Right here, 350 patient stories from 44 states. This is long overdue. People that watch their bodies deteriorate in real time. Family
Among those speaking at the republican jewish coalitions 2023 Leadership Conference in las watch live at noon eastern on cspan saturday, or online at cspan. Org. Up next, testimony on access to research and treatment for patients with Rare Diseases. Advocates for medical ethics and therapeutic industry professionals also testified to provide insight on the fda Clinical Trial process. This hearing with the Senate Special Legion Committee is about two hours. With the Senate Special aging committee is about two hours. Good morning. Welcome to the committees eighth hearing of the 1 18 congress about Drug Development for rare and serious diseases. As is the tradition of the committee, the aging Committee Ranking member, Ranking Member braun in this case, will offer an opening statement. Ranking member braun thank you, senator. I thank the witnesses for coming and for all the folks from around the country who are here today. There are over 7000 rare and serious diseases known to man. Its est
Patients with Rare Diseases. Advocates for medical ethics and a therapeutic industry professionals also testified to provide insight on the fda Clinical Trial process. This hearing before the Senate Special Agent Committee is about two hours. [background noises] [background noises] good morning the Senate Special committee will come to order welcome everybody. Welcome to the committees eighth hearing of the one her 18th congress about Drug Development for rare and serious diseases. As is the tradition of the committee, the aging Committee Ranking member, Ranking Member brought in this case will offer an opening statement. Thank you, senator. Thank the witnesses for coming and for all of the folks from around the country here today. There are over 7000 rare progressive and serious diseases known to man. It is estimated 95 black treatment. Yet in my time et cetera there is not been one Senate Hearing to examine promising therapies for people with rare progressive and serious diseases. Th
It is a pit of a freak key friday in the markets. I am Lauren Simonetti in for liz claman. Lets begin with a fox market alert. Look here, you can see stocks searching for direction all day, switching between red and green. Right now the dow is up 80 to points, near the highs of the session. The s p 500 is fractionally higher, not even a point. The nasdaq is lower by 2426 26, and the russell 2000 is down by 2. 5. We are within reach of records for all three of the major indices. Right now the dow needs to close higher by more than 38 points. It will then finish at a record high. It did cross 40,000 yesterday but has yet to finish bo that level. As for the s p 500, the Broader Market needs to gain 11 points for its record close, and the nasdaq needs to finish up by 44. Of course, anything can happen in this final hour of trade, and since were coalescing right near those record highs, well be monitoring it the whole time. Lets take a look at the week. Really great week. Each index up over
Recognizes so for five minutes for purpose of the Opening Statement 21st century chairs sector is a monumental achievement as the product of a bipartisan vote the love effort from the committee to bring the of laws and to the modern era in one year since signed into law i remember remarking at that press conference one year ago to imagine a world that government was not the obstacle but in allied to deliver drugs and devices and cures to patients. Looking into the implementation the transformational bill to give them packed the village to researchers and scientists with the latest breakthrough there peas is seeking treatment to give help to them and their loved ones and advocates for. This morning well hear from those of are responsible for all of the Biomedical Research provisions in the commissioner of the fda coming back to the subcommittee your schedules switched and we appreciate you coming before us today at the time of the launch of the 21st Century Cures Initiative the statemen