walk around the age of 10. most don t live past their 20s. but 12-year-old max seems to defy these odds. and jen believes it s due to an experimental drug. max began weekly infusion treatments of the drug 2 1/2 years ago, part of a small clinical trial of 12 boys. austin didn t qualify because he was already in a wheelchair. how much of a difference has it had in their lives? i think you re literally looking right now at the mother of two children with duchenne, one who is going to be the first child to survive the disease and one who is going to have the last child to die from it. reporter: since the trial started, all 12 boys have seen their symptoms start to stabilize, and there don t seem to be many side effects, but the fda still has not approved the drug. they say they want more evidence. would the fda say look, we re just not sure yet. this is part of why we exist, to be sure that it is safe. yes, it s been a two-year trial. but we have to follow these kids
hookah smoke can be just as toxic. this is a traditional hookah. the basin is filled with water, tok tobacco heated using charcoal, producing a smoke that moves up the chamber and is inhaled through the hose. you might hear that water filters out some of the cancer-causing toxins. that s not true. they re exposed to more than cigarette smokers. here is a number you won t forget, in a 60-minute hookah session, 100 to 200 times the volume of smoke. realize don t notice it because the water cools the smoke making it less irritating to the lungs. it is important to point out that the fda regulations flag the risks from hookah smoke. before we go today, i want
plouffe. the one thing that is interesting, if you look at the polls on the question of income tax rates, you have 47% that want to increase for those about 250,000. no increase for anyone tax increases, and 13%, increases for all. 47% 1,250,000 or above and 48% don t raise them at all or reason for everyone. so, you know, if you look at the exit polls, there is not really a definitive answer there. the republicans are going to say this is not the right answer and that is how they are starting to negotiation. the democrats have a stronger hand here.
insurance as that this is the kind that will allow you access to see this doctor whether you are sick or well. i am concerned that it may not pay for high technological solutions on the other end that don t work for everyone. that are brand-new and bells and whistles that are really exciting, personalized medicine, but a very expensive. insurance companies may decide not cover it. and medicare, or that we have talked about, they may decide not to cover it. shannon: these changes are where a consumer in the state of utah they would have to shop for your insurance. that is where they will be better than products will be there. so they can set their own, they can allow the feds to come do it, or they can do a kind of a hybrid. but you are talking about it significantly changing what insurance is available or how it works for people in practice? absolutely. what i m most concerned about is the price of premiums. i am all for that.
the story with the community pulling together. people on higher levels of government don t want to come in to help. fema has been in the field and willing to help. i don t know if people appreciate the role fema plays. they don t make everything go away. they play a supportive role through local officials. shannon: we have to be self-relights and resilient. it s fantastic to hear about volunteers coming from all over the country and people cooking meals. maybe that s how we should be operating in our lives on a daily basis. it s always the people that do it for themselves. shannon: we wish you the best. we know there is a long