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Rare Disease Day: Sleeping can be life-threatening for these newborns with CCHS

Life-long ventilator support the only option for kids with Congenital Central Hypoventilation Syndrome

Indian expressRare diseaseRare diseasesRare disease dayRare disease policyNdia rare disease policiesAre disease organisationHat are rare deceaseIfe threatening deceaseEep sleep can be life threateningCongenital central hypoventilation syndromeOund the clock ventilatorsNdian express news

Refocusing on Rare Diseases

Refocusing on Rare Diseases
biospectrumindia.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from biospectrumindia.com Daily Mail and Mail on Sunday newspapers.

Nabendu chatterjeeRakesh mishraKarthik bharadwajJogin desaiAshwin dalalDravet lennox gastautDrug administrationInstitute of choleraNational consortium for researchEyestem researchNational apex committeeNational policy for rare diseasesTata institute for geneticsUnion health ministryCsir centre for cellular molecular biologyNational research foundation

We are many: Advocating for patients with rare diseases

We are many: Advocating for patients with rare diseases
georgeherald.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from georgeherald.com Daily Mail and Mail on Sunday newspapers.

South africaSouth africansMonique nelNguengang wakapRare humanitarian programmeRare disease information centerNational treasurySanofi your healthSanofi genzyme rare humanitarian programDisease dayRare diseasesRare disease policyMedical advisorRare disease informationAbout rareAccessed january

Rare disease patients looking in from the outside: Department of Health needs to do better

Rare disease patients looking in from the outside: Department of Health needs to do better
iol.co.za - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from iol.co.za Daily Mail and Mail on Sunday newspapers.

South africaSouth africansMonique nelRare humanitarian programmeNational treasuryRare diseasesRare disease policyRare disease

OKU Sentral urges Health Ministry to set up rare disease policy

KUALA LUMPUR: OKU Sentral president Senator Datuk Ras Adiba Radzi has called on the Health Ministry to establish a Rare Disease Policy to safeguard the welfare of those suffering from rare illnesses.

Kuala lumpurUnited kingdomRas adibaDatuk ras adiba radziGenomics medicine serviceCommunity mental health mentariMental health instituteHealth ministryWelfare departmentSenator datuk ras adiba radziRare disease policyHealth minister dr zaliha mustafaCommunity mental healthSocial welfareRas adiba radziZaliha mustafa