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Europe s rare diseases postcode lottery creating health inequality

Europe s rare diseases postcode lottery creating health inequality
euractiv.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from euractiv.com Daily Mail and Mail on Sunday newspapers.

Giuseppe limongelliAnnalisa scopinaroItalian federation of rare diseasesNational strategy on rare diseasesMinistry of healthSpanish federation for rare diseasesSpanish federationRare diseasesMember statesProfessor giuseppe limongelliHereditary cardiovascular diseases unitMonaldi hospitalRare diseases coordination centreCampania regionItalian federationItalian regions

My son is not there anymore : How young people with psychosis are falling through the cracks

The earlier a person’s symptoms are treated, the better the outcome – but many people with psychosis or schizophrenia struggle to get access to care.

Republic of irelandStephen donnellyWesley mulcahyAaron kennyJacob vorstmanSuzanne kelleherAnne lawlorKielan kennyKarin kennyGeneva university laboratory in childChildren disability network teamRosalynn carter fellowship for mental health journalismAdult mental health servicesNational screening advisory committeeDisability network teamNorth wicklow

New group to develop national rare disease plan

Target date of autumn 2024 set for new proposals

Breda smythDerick mitchellVicky mcgrathCecily kelleherHealth coverage day onHealth research boardPublic health medicineDepartment of childrenNational rare disease steering groupRare disease patient forumDepartment of healthProf cecily kelleherRare disease planProf kelleherRare diseases ireland vicky mcgrathIrish platform

Establishment of National Rare Disease Steering Group

Establishment of National Rare Disease Steering Group
anglocelt.ie - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from anglocelt.ie Daily Mail and Mail on Sunday newspapers.

Republic of irelandCecily kelleherBreda smythNational rare disease steering groupHealth service executiveHealth stephen donnellyNursing homes expert panelPublic health medicine epidemiologyEuropean reference networksRare disease steering groupDepartment of healthIreland traveller health studyNational rare diseasePublic health reform expert advisory groupPatient forumNational rare disease plan

Poland to allocate EUR 154 8 million for Rare Diseases Plan

News & Politics March 01, 2021 According to the health minister around 6-8 percent of the population, or at least two to three million people in Poland, have rare diseases. Tomasz Gzell/PAP Poland will spend over PLN 700 million (EUR 154.8 million) in 2021-2023 to cure rare diseases as a part of the Rare Disease Plan, the health minister has announced on Monday. Currently, the Plan defines 40 specific tasks and deadlines for their implementation, worth over PLN 90 million (EUR 19.8 million). These are not all costs, because in the case of rare diseases, advanced drug therapies are of a great importance, and we will use the Medical Fund in this area,” Adam Niedzielski said at the press conference.

Adam niedzielskiTomasz gzellRare disease planMedical fundHealth careRare diseases planரேர் நோய் திட்டம்மருத்துவ நிதிஆரோக்கியம் பராமரிப்புரேர் நோய்கள் திட்டம்