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at a specialist school known as treloar s. it had medicalfacilities on site which helped pupils lead a more normal life, but also presented clinical researchers with a unique cohort of children. i met three of the 122 boys who attended the school in the 70s and 80s, gary, steve and ade. every new boy presumably was started on a trial. i mean, i certainly did. i went in 75. by the beginning of 76, i was on a trial for quite some time. research focused on preventative, known as prophylactic treatment, which meant three to four times more of the blood product known to be contaminated was given to the boys than they required. if we didn t go for our prophylaxis appointments, we would either get dragged out of school lessons, because you had missed your appointment, and if you did it so many times, you got black marks. they were also supposed to call. the haemophilia doctors were supposed to call our parents, and they were supposed to make that

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