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These little girls were born with the same cruel genetic illness but baby Amelia will never suffer like big sister Maisie - thanks to a miracle £75,000-a-dose jab

Portia Thorman of the Spinal Muscular Atrophy charity SMA, said these new treatments were not available when her son Ezra, pictured left, was born.

United kingdomPortia thormanSinead connollyLaurent servaisElizabeth wraigeUnited kingdom national screening committeeLiege universityOxford neuromuscular centreNational screening committeeSpinal muscular atrophyEvelina london childrenProfessor laurent servaisProf servais

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