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The Barth Syndrome Foundation Delivers Petition to FDA Advocating for a Fair, Equitable and Appropriate Review of the Only Potential Treatment for Barth Syndrome

/PRNewswire/ The Barth Syndrome Foundation (BSF), the only patient advocacy organization dedicated to Barth syndrome and saving lives around the world.

Puerto ricoUnited statesEmily milliganHylton joffeKate mccurdyJamie dubuqueNorman stockbridgeUs congressOffice of cardiologyDivision of cardiologyBarth syndrome foundationDrug administrationPetition garnered nearlyNew drug applicationExecutive directorToo rare

The Barth Syndrome Foundation Delivers Petition To FDA Advocating For A Fair, Equitable And Appropriate Review Of The Only Potential Treatment For Bar

The Barth Syndrome Foundation Delivers Petition To FDA Advocating For A Fair, Equitable And Appropriate Review Of The Only Potential Treatment For Bar
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United statesPuerto ricoNorman stockbridgeJamie dubuqueHylton joffeEmily milliganKate mccurdyDivision of cardiologyUs congressOffice of cardiologyBarth syndrome foundationBarth syndrome foundation eric leeDrug administrationPetition garnered nearlyNew drug applicationOak campus