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Duchenne Muscular Dystrophy Added to New York State s Newborn Screening Panel

/PRNewswire/ In a monumental stride towards improving the lives of children affected by Duchenne muscular dystrophy (Duchenne), Parent Project Muscular.

United statesStony brookNew yorkUniversity of rochester medical centerLauren stanfordNiki armstrongNewborn screening translational research networkGenetic servicesAdvisory committee on heritable disorders in newbornsCertified duchenne care centersNorthwell health hospitalsAmerican college of medical geneticsCommunity researchNational institutes of healthNew york stateParent project muscular dystrophy

Gene genies

Gene genies
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Alliance for regenerative medicineMuscular dystrophy associationRegenerative medicineParent project muscular dystrophy

18th Annual Sam s Night Event Raises Over $1,400,000 For Duchenne Muscular Dystrophy Research

/PRNewswire/ The Killian family, of Rockwall, are celebrating a record-breaking fundraising milestone with their annual Sam s Night event, to benefit Parent.

United statesCushman wakefieldKessler collinsVinson elkinsJennifer bowlbyJohn killianStacey mageeHoulihan lokeyChris messickTrammell crow companyErnst youngAltus groupWells fargoStream realtyColliers internationalMessick peacock associates

For the Love of Charlie

MANLIUS, New York — When Charlie Prior’s second-grade teacher asked his class to illustrate how their family spent their summer, the 7-year-old didn’t hesitate to use the box of cray.

New yorkUnited statesSyracuse universitySalena zitoCoach to cure at syracuse universityCharlie priorCheryl priorParent project muscular dystrophyCapitol hill

16th Annual Coach to Cure MD September 28-30, 2023

16th Annual Coach to Cure MD September 28-30, 2023
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United statesTodd berryPrnewswire collegeAmerican football coaches associationUnite againRaise awarenessDuchenne muscularAmerican football coachesExecutive directorParent project muscular dystrophyPat furlongFounding presidentProject muscular dystrophy