MENA Angelman Association launched in Dubai bignewsnetwork.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from bignewsnetwork.com Daily Mail and Mail on Sunday newspapers.
Get latest articles and stories on Business at LatestLY. In an attempt to grow their online presence during Covid, several Patient Advocacy Groups (PAGs) and Non-Profit Organisations such as the Indian Cancer Society, Organisation for Rare Disease (ORD), and Cure SMA partnered with IIDE to learn digital skills. Business News | Project Prarambh: Initiative by IIDE to Digitally Transform the Non-Profit Sector.
Prasanna Shirol
Prasanna Shirol, Co-founder and Executive director of Organisation for Rare Disease in India (ORDI), recently joined NewsX for a conversation under its special segment News X India A-List series. Mr Prasanna is one of the key pioneers in the field of health advocacy in India and the co-founder and ED of ORDI, a national umbrella organization representing the collective voice of all patients with rare diseases in India.
Committed to spreading national awareness about rare diseases in India, Mr Prasanna Shirol is a man with a perspective of leading healthcare and advocacy to a point where it can aware people of what these are and the way forward. He is the co-founder of ORDI- Organisation for Rare Disease in India, which aims to function in the areas of awareness, advocacy, and patient support programs. He has been instrumental in the healthcare advocacy initiative for the past 11 years.