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A race against time: One family s plight to treat their son s rare muscle wasting disease

A race against time: One family s plight to treat their son s rare muscle wasting disease
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Will the NHS fund a £2 6m life-changing gene drug jab that allows boys with a rare muscle wasting disease the chance of walking

John Paul Hopkins, 32, from North Wales is hoping to get his son Rory, 6, who was diagnosed with Duchenne muscular dystrophy in 2021, onto gene therapy like Elevidys.

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