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Empowering : Rare Disease Week in DC to draw calls for change – NBC4 Washington

Patients will gather on Capitol Hill to talk to members of Congress and build community as part of Rare Disease Week.

United statesVirginia beachNell choiMarie woodLauren stanfordStephanie riordanNational organization for rare disordersChildren nationalRare pediatric disease priority review voucher programEverylife foundation for rare diseasesDrug administrationChildren health insurance programCapitol hillRare diseaseRare disease legislative advocatesEverylife foundation

Children s National Hospital hosts prom for patients battling illnesses

Children s National Hospital hosts prom for patients battling illnesses
fox5dc.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from fox5dc.com Daily Mail and Mail on Sunday newspapers.

United statesNell choiAngelica bowmanMason sangalangMaria izazaChildren national hospitalDunkin joy in childhood foundationChildren nationalChildren national promNational hospitalNational promDunkin joyChildhood foundation

Global Genes Honors a Diverse Group of International Rare Disease Leaders at the 2022 RARE Champions of Hope Celebration

Global Genes Honors a Diverse Group of International Rare Disease Leaders at the 2022 RARE Champions of Hope Celebration
globalgenes.org - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from globalgenes.org Daily Mail and Mail on Sunday newspapers.

United statesAdrian goretzkiCraig martinNell choiArthura levinRichard horganCynthia langChampion in advocacy foundationAvidity biosciences incHealthcare education instituteLysosomal storage disorders support society indiaColumbia universityUkrainian association of pediatric immunologyChief scientific officerAvidity biosciencesMedical care