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Mumbai Couple Gets Rs 15 31 Crore As Part Of Child s SMA Drug Funding

A couple from Mumbai who recently shifted to Kerala has received Rs 15.31 crore from an anonymous donor to purchase a life-saving drug for the treatment of their 16-month-old son.

Mumbai couple gets Rs 15 Cr from anonymous donor as child s drug fund

The child was diagnosed with spinal muscular atrophy (SMA) type 2, a rare disease for which a key one-time drug costs almost Rs17.3 crore.

Pharma companies charity hope for kids with rare spinal disorder

The rare disease affects one in every 8,000 children. The bigger problem, according to parents and doctors, is the lack of awareness about rare diseases. By the time parents reach out to the doctors, there has already been a delay.

dhairya fights sma needed the most expensive drug people saved lives by donating 16 crores - बच्ची को सबसे महंगी दवा की थी जरूरत, लोगों ने 16 करोड़ दान कर बचाई जान

dhairya fights sma needed the most expensive drug people saved lives by donating 16 crores - बच्ची को सबसे महंगी दवा की थी जरूरत, लोगों ने 16 करोड़ दान कर बचाई जान
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