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KARE initiative to prevent, manage rare diseases a decisive step by Kerala, says CM Pinarayi Vijayan

KARE initiative to prevent, manage rare diseases a decisive step by Kerala, says CM Pinarayi Vijayan
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Arya rajendranJeevan babuMohammed hanishAntony rajuPinarayi vijayanVeena georgeHealth services kj reenaKerala infrastructure investment fund boardNational rare diseasesWorld health organizationKerala against rare diseasesChief minister pinarayi vijayanNational rare diseases policyHealth ministerChief ministerMayor arya rajendran

Lives hang in the balance: Government funding delays put kids at risk!

Parents’ worries mount as govt support remains elusive for costly treatments

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Delhi High Court Constitutes 5-Member Committee For Efficient Implementation Of National Rare Diseases Policy

The Delhi High Court has constituted a five-member committee so that the National Policy for Treatment of Rare Diseases, 2017 can be implemented in an efficient manner and also to ensure that its.

Justice prathibam singhNikhil tandonJustice singhMadhulika kabraMinistry of healthNational policy for treatment of rare diseasesIndian council for medical researchMinistry of health family welfareDelhi high courtNational policyRare diseasesPrathibam singhFamily welfareDirector generalIndian councilMedical research

Balm for rare diseases

The National Rare Diseases Policy announced by the government is a step forward in an area that called for much attention from both government and society. It addresses a number of issues and challenges faced by patients of rare diseases and their families and caregivers, but it also has scope for improvement. Rare diseases present unique problems which are not seen in the

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