Rare diseases, often overlooked, affect millions worldwide. Rare Disease Day, observed on February 29th in 2024, highlights the challenges faced by those with rare diseases. The theme, "Share Your Colours," emphasizes collaboration and support. In India, rare diseases like Acanthocytosis Chorea and Achalasia Cardia impact individuals and families, highlighting the need for awareness and support.
In honor of Rare Disease Day, this exploration of prurigo nodularis highlights the skin disease’s psychosocial impact on patients around the world living with the condition.
Parents of children with rare disease want clinical trials to save their children. Many become advocates. Even if they die, participating in research adds meaning.
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