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Nashville songwriters create song for boy with two rare disorders

Nashville songwriters create song for boy with two rare disorders WTVF and last updated 2021-05-13 16:48:56-04 NASHVILLE, Tenn. (WTVF) â Six-year-old Nash Hensley, from South Bend, Indiana may be the biggest Kenny Chesney superfan there is. He can name several of his hit songs, and often gives impromptu performances of Chesney s songs for his family. He just got hooked, said Nash s mom Angela. I couldn t talk on Bluetooth in my car because all he d want to do is hear Kenny Chesney. Nash came to know Chesney s music during trips to the doctor s office for tests related to two rare disorders he s had since birth. One, PKU, will put him on a low-protein diet for life. The other, achondroplasia, will keep him from growing to a typical height.

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How a 6-year-old with 2 rare disorders inspired a country song about Kenny Chesney

How a 6-year-old with 2 rare disorders inspired a country song about Kenny Chesney CNN Country music star Kenny Chesney. A 6-year-old with a rare combination of genetic disorders just got his big break in Nashville thanks to a nonprofit and some songwriters for Kenny Chesney, who helped him get through years of hospital stays. Nash Hensley, of South Bend, Indiana, was born with two genetic disorders: achondroplasia, a bone growth disorder characterized by dwarfism, and phenylketonuria, or PKU, which causes the phenylalanine amino acid to build up in the body, according to the Mayo Clinic. PKU is caused by a defect in the gene that produces the enzyme needed to break down phenylalanine, so Nash is required to live on a restricted, low-protein diet.

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How a 6-year-old with two rare disorders inspired a country song about Kenny Chesney

How a 6-year-old with two rare disorders inspired a country song about Kenny Chesney
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Song written for South Bend boy with rare disorders, wishing to meet country star Kenny Chesney

Nash and Aleigha Hensley, front, pose Friday in the Nashville, Tenn., studio where they heard the kidsâ new song. Their parents, Angela and Nick Hensley, are at far left and right, with the songwriters Brock Berryhill, Brad Clawson, Greylan James and Jamie Paulin. Photo provided

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How a 6-year-old with two rare disorders inspired a country song about Kenny Chesney

How a 6-year-old with two rare disorders inspired a country song about Kenny Chesney
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