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Transthyretin Amyloid Cardiomyopathy (ATTR-CM) is a rare heart disease. Early diagnosis is critical

New Delhi [India], November 18 (ANI/Mediawire): Often, heart disease symptoms are not paid adequate attention by a large section of the Indians unless the disease reaches an advanced stage. The studies(1) on the burden of cardiovascular diseases have revealed that the casualty rate due to CVD at 272 per one hundred thousand population in India is much higher than that the global average of 235. Bedside high mortality rate, Indians need to be concerned about the stark fact that CVDs strike our brethren ten years earlier than their western counterparts. This ever-growing menace led to strengthening of the efforts to spread awareness and knowledge about CVDs over the last decades. However, the prevalence of rare heart diseases has failed to attract the due recognition leading to lack of knowledge resulting in extremely late diagnosis and treatment IHW council initiative, supported by Pfizer, held a live online seminar on 4th November 2022 in association with TOI to increase knowledge on o

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Health Care Week in Review: CMS Issues a Request for Information to Gather Public Input on Accessing Healthcare and Related Challenges, and Other Health Equity Considerations | Alston & Bird

Below is Alston & Bird’s Health Care Week in Review, which provides a synopsis of the latest news in health care regulations, notices, and guidance; federal legislation and.

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Alston & Bird Health Care Week in Review - November 2021 #3 | Alston & Bird

Below is Alston & Bird’s Health Care Week in Review, which provides a synopsis of the latest news in healthcare regulations, notices, and guidance; federal legislation and congressional.

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Transcripts for BBCNEWS BBC News 20210603 19:56:00

nearest planetary neighbour became a fiery hellscape while our own planet thrived. the missions are scheduled to launch at the end of the decade. an initial development budget of about £350 million has been allocated to the two missions. let s stay with space, because this evening, thousands of worms are on their way to the international space station as part of a mission to better understand how ageing affects human muscles. researchers said the effect of space flight on humans had long been a concern, with astronauts losing up to 40% of their muscle after six months in orbit. the worms share many of the same biological characteristics as humans and the hope is the research could also help shed light on developing new treatments for muscular dystrophies, a group of inherited genetic conditions that gradually cause the muscles to weaken. now it s time for a look at the weather with ben rich. good evening. after the very warm weather we had earlier on this week, today, temperatures dro

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A good start: The Hindu Editorial on government support for continual treatment of those with rare diseases

Fund support from government is vital for continual treatment of those with rare diseases It is binding on a welfare state to take care of every single citizen. Securing the wellbeing of every one, particularly those unable to help themselves, irrespective of whether they constitute a critical mass or not, is important. The recent notification of the National Policy for Rare Diseases 2021 after various interventions, including the court, is pegged on this principle of inclusion. A good start, it offers financial support for one-time treatment of up to ₹20 lakh, introduces a crowdfunding mechanism, creates a registry of rare diseases, and provides for early detection. In its final form, however, the policy has left the rare diseases lobby sorely disappointed on a crucial note. Rare diseases are broadly defined as diseases that infrequently occur in a population, and three markers are used the total number of people with the disease, its prevalence, and the availability/non-avail

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Drugs-controller-general

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