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The Unfulfilled Commitment to Rare Disease Patients in Iran

Patients with rare diseases have repeatedly protested the subpar treatment in trustee institutions and regime organizations.

Islamic republic of iranSaeed azamianSina alikhaniMorteza alikhaniHamidreza edrakiRamek heydariMinistry of healthPatient associationIran rare diseases foundationSociety for the support of dystrophy patientsSpinal muscular atrophyIslamic republicEbrahim raisiRare diseases foundationDystrophy patients

Iran s SMA Patient Ambassador Hospitalized Due to Lack of Medicine

The hospitalization of Sina Alikhani, a young person suffering from Superior mesenteric artery (SMA), in Iran due to the lack of medication and the release of a video of him lying on a hospital bed ha

Hamidreza adrakiMorteza alikhaniSaeed azamianSina alikhaniPatients associationMinistry of healthRare diseases foundationEbrahim raisi

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