The Dance Centre will showcase online performances in the lead up to International Dance Day on April 29.
But the family hasn’t made the six-hour trip from Penticton to Vancouver in more than a year. Charlotte’s parents feel travel and finding somewhere to stay creates too much COVID-19 exposure risk for their child, let alone the risks in the hospital.
Five-year-old Charlotte is one of two people in B.C. with Mirage Syndrome, a rare genetic condition affecting her blood and immune system. She is immunocompromised and uses a ventilator for her central hypoventilation and chronic lung diseases and a feeding tube.