The goal is to raise 2.1 million dollars for a treatment called ZOLGENSMA. This treatment is the most expensive in the world, but it is the only way Rafita can have a quality of life and survival.
Timing is everything. On the GoFundMe page, Rafita s parents say that his best chance would be to administer the drug before 100 days. This is a genetic disease primarily affecting the central nervous system. But for Rafita, who is just a few months old, her life is on the line every day.
A few weeks ago, Niemann made the public announcement during the Mayakoba Golf Classic tournament and said he was pledging his winnings to Rafita. This brought awareness to professional golf and saw many other fellow PGA players in support of Niemann.
Tiger Woods and son to headline PNC Championship
The youngest competitor in the PNC Championship’s history also may be its most anticipated.
Eleven-year-old Charlie Woods will make his debut in the annual exhibition alongside his father, who just happens to own 82 PGA TOUR victories.
Snippets of Charlie’s swing, shot by clandestine cameramen, have been shared on social media but the PNC will be the public’s first opportunity to see his game on display.
The PNC will allow fans to see another side of Woods, as well. He has largely shielded his children from the cameras, but all 36 holes of this week’s event will be televised, allowing us to watch Tiger mentor his son the way Tiger’s dad, Earl, did for him. Earl used to jangle change in his pocket and slam on cart brakes to develop his son’s focus while standing over the ball.