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Dr Mairéad O’Driscoll, HRB chief executive
Health Research Board welcomes update to personal data guidelines
The Health Research Board (HRB) has welcomed an update to regulations governing the collection of personal information for health research purposes.
The Health Research Regulations (HRR) were introduced in 2018 in response to the European-wide General Data Protection Regulations (GDPR) to protect the rights and freedoms of research participants.
The recent amendments covered pre-screening to establish suitability or eligibility for inclusion in health research; carrying out low risk retrospective chart reviews; deferred consent in exceptional medical situations; and new rules on consent generally.
Dr Mairead O’Driscoll, Chief Executive at the Health Research Board, said that the amendments were “important and pragmatic changes to the Health Research Regulations in response to matters raised by the research community”.