| UPDATED: 12:01, Sat, Jan 2, 2021
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PKU campaigners thank Daily Express for support over Kuvan Sign up to receive our rundown of the day s top stories direct to your inbox
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PKU sufferers endure a severely restricted diet as too much protein causes brain damage, so they have to avoid meat, fish, eggs, dairy and some vegetables. The Daily Express is fighting for the NHS to end its 12-year delay and buy the drug Kuvan, which would enable sufferers to eat more normal meals. Now 11 youngsters with the cruel genetic condition have filled a box of “Festive Wishes” and sent it to Kuvan’s maker BioMarin.