The parents of a 10-month-old baby say they were overwhelmed and cried when they heard that the treatment which could keep him alive had been approved for use by the NHS despite it being labelled the most expensive drug in the world.
Rosie-Mae Walton, 19, and Wes Powell, 22, said “it would mean the absolute world to us” if their son Marley, who has a rare genetic disorder, was eligible for treatment with the US gene therapy Zolgensma after it was licensed for use on the NHS in England.
But they said it is too early to know whether he will be approved for the drug.
Parents overwhelmed by NHS licensing of world s most expensive gene therapy
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Parents overwhelmed by NHS licensing of world s most expensive gene therapy
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Parents overwhelmed by NHS licensing of world s most expensive gene therapy
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Parents overwhelmed by NHS licensing of world s most expensive gene therapy
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