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From ALS to syndromes without a name, rare disease battles made easier by the internet

Rare diseases affect from 263 million to 446 million people worldwide, yet little time is dedicated to them in medical school. Feb 28 is a day to mark rare diseases, and raise awareness of them globally. Healthcare professionals have limited knowledge of these conditions, and no wonder, says Blayne Baker at UK charity Beacon, which is building a global rare-disease.

United kingdomNew yorkUnited statesHong kongUniversity of hong kongHong kong generalLou gehrigKarl stargardtLynsey chediakHenry louis gehrigHong kong alliance of rare diseaseBlayne bakerNew york yankeesSwan united kingdomHong kong allianceRare disease

Rarebase launches a neuroscience drug discovery platform collaborating with 15 rare disease patient organizations

Rarebase launches a neuroscience drug discovery platform collaborating with 15 rare disease patient organizations
prnewswire.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from prnewswire.com Daily Mail and Mail on Sunday newspapers.

Onno faberMike gragliaSandra sermoneLynsey chediakAllison mooreHereditary neuropathy foundationSyngap research fundResearch foundationKids research foundationManaging directorNasha fitterCharlene son rigbyPenny howardHereditary neuropathyலின்ஸி செடியாகிஅல்லிசன் மூர்

Rarebase launches a neuroscience drug discovery platform collaborating with 15 rare disease patient organizations

Rarebase launches a neuroscience drug discovery platform collaborating with 15 rare disease patient organizations
thepress.net - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from thepress.net Daily Mail and Mail on Sunday newspapers.

Onno faberMike gragliaSandra sermoneLynsey chediakAllison mooreHereditary neuropathy foundationGwenyth gray foundationCuremito foundationSyngap research fundLove foundationResearch foundationKids research foundationIrare villageRare crossroadsManaging directorNasha fitter