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Identical twin cruelly dubbed half face as rare condition causes face to cave in

Lukas Caldwell has been sharing his story of living with a rare condition with his 2.9 million TikTok followers having been bullied relentlessly growing up being called brutal names by bullies

United statesLukas caldwellRomberg syndromeParry romberg syndromeRoberg syndromeWal mart storesHeart diseaseSecondary school

Teen uses social media to document rare disorder that causes face to waste away

Teen uses social media to document rare disorder that causes face to waste away
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United statesLukas caldwellNational institutes of healthNational institutesBoston children

US Teen Fighting Rare Condition That Has Caused His Half Face To Cave In

The condition affects one in 250,000 people. Over time, muscle and fat in the skin shrinks and bones may become thin and change shape.

United statesLukas caldwellTruly showUs teenagerRare medical conditionParry romberg syndromeFacial muscles

Bullies call me Half Face because my extremely rare disorder caused one-half of my face to cave in

Lukas Caldwell of Nebraska enjoyed a happy early childhood alongside his twin brother Ben, but everything changed when he was diagnosed with a rare condition that causes facial muscles to atrophy.

United statesLukas caldwellTik tokRomberg syndrome