eat everything and cope moving and never get angry. promising news to share with you about double lung transplant patients. little sarah. her mom hosted on bock bock. two and half years on oxygen sarah is officially off oxygen. sarah suffers from siftic if i brosis and needed a double lung transplant to survive. her parents fought the courts to get her on the transplant list. she is recovering and celebrated her 11th birthday earlier this month. and i tweeted out go, sarah. a music legend s voice silenced by a devastating illness. linda ronstadt i am going back come what may to blue ba you.
there s significant medications in terms of making sure she doesn t develop other infections. you also have a genetic disease that s at the heart of this. this lung transplant doesn t take care of that genetic disease. people are at risk for infections and damage to their other organs. it is going to be a long road. that s what you and jason were eluding to in terms of how e noti emotionally charged this has been. this isn t a cure all. thank you so much. we really wish little sarah the very best. we re also following this story. he s hiding out and he s also speaking out. this is the man who leaked details of phone and internet
it moved up the 10-year-old up the list for transplant. the girl would have died soon without new lungs. jason carol joins us with good news. everybody was kind of hoping and waiting and seeing what would happen. this was rather a surprise. have you spoken with the mother? reporter: it was a surprise to the family and sarah had not been doing well. she had been very sick, in critical condition and had really been struggling all week and all of late last week. then imagine how the family felt when last night at about 10:30 doctors came in and gave them word that a lung donation had been made available. then everyone sort of goes into this mode of getting sarah prepared for surgery. we re told she went into surgery around 11:20 this morning. she still has a long road ahead
of her. this is a difficult surgery that she will have to undergo. her parents want to make sure their little girl has done well at the out set of that surgery. i also want to tell you, this has been a long road. it began with a long wait, 18 months waiting for a lung donation to come through. they do not happen that often. her parents thought the system was unfair feeling as though if you re under 12 years old and sarah is ten, you don t have y priority on the over 12 list. they feel there s more donations available for those children on that list. because of a rule children under 12 were not allowed on that list, so they sued. a judge ruled in their favor. what you had was this temporary
period of time where children, like sarah, are then allowed on that list and now look what happens. now she has this lung donation that s become available. we don t know at this point if this donation came from a child or an adult. we re still trying to sort that out. also on monday another big major development. a change to the rules and this happened on monday because there was an emergency meeting that took place with the national organ procurement and transplantation network as well as the united network for organ sharing. these are the organizations that oversee and maintain these lists. they held an emergency meeting and made change to their policy as a result of what happened with sarah. all right. it s great news. jason thank you so much. i want to bring in dr. sanjay gupta joining us on the phone. tell us what is little sarah going through right now.