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After losing son to rare disease at 17, mom helps spur its 1st treatment TODAY 1/11/2021 © Provided by TODAY When Dr. Leslie Gordon’s 2-year-old son Sam was diagnosed with progeria back in 1998, she had no idea what it was. Even as a medical doctor with a Ph.D., she’d never encountered the syndrome in all her years of school. “Progeria is an ultra-rare disease,” she told TODAY Parents. “We did what any parent would do: We dropped everything and tried to figure out what was going on. What could help him? Were there any experts in the field? Were there any treatments? Was there someplace to go for information? And we discovered there was absolutely nothing out there.”

United statesUnited kingdomLeslie gordonTina pickardLas vegasGordon ramsayScott bernsSam bernsZach pickardAshley gordonBrandon pickardNational organization for rare disordersDrug administrationProgeria research foundationLeah fastenNational organization