expecting that we were going to hear the word from the fellows de&f company that were going up the cliff. we had 30 of us in our little lca that were very disappointed when we heard captain rafferty said we have no choice we have to go into the omaha beach instead because we did not get the word. we started with a disappointment but i would say we were pleased because of all the texas battleships and all the rockets going off and everything along the planes coming over we thought, well possibly this is going to be kind of a piece of cake anyway so that we would meet them later on over at the point. but that never occurred. you were shot. i was hit. once we approached the beach,
can do it. he literally pushed me away and i said, okay, i grabbed my camera and i shot that video. well, it is touching, and i love when he says i can do it, i can do it. troy, as his father, tell me about how it s been on the family and also explain the genetic eye disorder. how rare is it? well, the eye disorder itself is very rare. there s only 3,000 people in the country that have lca. and even more rare in gavin s gene mutation, there s only about 150 cases of it in the nation. so it s very rare. and jennifer, you and troy have been raising money for research that could lead to a possible cure. talk to me about the foundation. i love the name, by the way, gavin s groupies. tell us about that. thank you. yeah, our gavin s groupies are basically all of our supporters and our friends and family. hi, guys. gavin r. stevens foundation, we started it because we felt we needed to do something and needed to heal. and the only way to do that is
you were telling me about this amazing clinical trial just a few years ago, what happened? yes, in 2009, there s another form of r.p. called lca which people are born or infants are born totally blind. so they have 40 participants and out of the 40, they brought vision back to some degree to all the participants. one boy in particular was 9 years old. and he had the most significant breakthrough. he was able to put his white cane down, he was able to play baseball. he s in school and doing the simple thing in life that we take advantage of on a daily basis. that actually paves the way for all the clinical trials that are now taking place and if they started with lca and they brought vision back to those participants, i know they re going to make a way to r.p. and that s what gives me so much hope as a mom. well, when people think that people who hold pageant titles have no purpose, you certainly have one. exactly. for this year. and to change that stereotype, just it s awes
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