By Published April 17 at 7:37 pm The family of Maria Svichynska and Vitaliy Svichynskyi hold their newborn son Dmytro, who was diagnosed with a rare genetic disorder Spinal Muscular Atrophy (SMA). The parents are raising $2.3 million for their son s disease treatment with Zolgensma, known as the world’s most expensive drug.
Life is the cost of one injection: a little boy from Odesa will become the third Ukrainian child who will receive the world’s most expensive injection.
Such children in Ukraine are called emoticons. They got this nickname because their diagnosis is spinal muscular atrophy (SMA).
Despite this very cute nickname, spinal muscular atrophy has been called the number one killer of hereditary diseases. One out of 6,000-10,000newborns will be born with SMA. Half of these children will die before they turn two years old, but the disease can make itself felt even at
goodman, patient, power, the kiddo foundation, who talked about health savings accounts but for rand paul and a couple others? and who talked about health care cooperatives? those innovative, so-called intellectual ideas of conservatives, they weren t even discussed and tried to ram through an establishment bill and they couldn t keep a simple promise that they all made for 7 1/2 years. donald trump comes in, okay, i ll do it calls, and they couldn t get the job done. mark: what else has donald trump done? he s cut taxes. mark: no, no, no, exposed the media, and this is why they hate him. i m convinced. the media have played this game with the american people for decades that they re objective and/or bipartisan and only reporting the news. he shown them to be a pseudoprofession. it s not a profession at all and shown them also to be is group think of one mind.
goodman, patient, power, the kiddo foundation, who talked about health savings accounts but for rand paul and a couple others? and who talked about health care cooperatives? those innovative, so-called intellectual ideas of conservatives, they weren t even discussed and tried to ram through an establishment bill and they couldn t keep a simple promise that they all made for 7 1/2 years. donald trump comes in, okay, i ll do it calls, and they couldn t get the job done. mark: what else has donald trump done? he s cut taxes. mark: no, no, no, exposed the media, and this is why they hate him. i m convinced. the media have played this game with the american people for decades that they re objective and/or bipartisan and only reporting the news. he shown them to be a pseudoprofession. it s not a profession at all and shown them also to be is group think of one mind.
you and i have read musgrave, goodman, patient, power, the kiddo foundation, who talked about health savings accounts but for rand paul and a couple others? and who talked about health care cooperatives? those innovative, so-called intellectual ideas of conservatives, they weren t even discussed and tried to ram through an establishment bill and they couldn t keep a simple promise that they all made for 7 1/2 years. donald trump comes in, okay, i ll do it calls, and they couldn t get the job done. mark: what else has donald trump done? he s cut taxes. mark: no, no, no, exposed the media, and this is why they hate him. i m convinced. the media have played this game with the american people for decades that they re objective and/or bipartisan and only reporting the news. he shown them to be a pseudoprofession. it s not a profession at all and shown them also to be is
goodman, patient, power, the kiddo foundation, who talked about health savings accounts but for rand paul and a couple others? and who talked about health care cooperatives? those innovative, so-called intellectual ideas of conservatives, they weren t even discussed and tried to ram through an establishment bill and they couldn t keep a simple promise that they all made for 7 1/2 years. donald trump comes in, okay, i ll do it calls, and they couldn t get the job done. mark: what else has donald trump done? he s cut taxes. mark: no, no, no, exposed the media, and this is why they hate him. i m convinced. the media have played this game with the american people for decades that they re objective and/or bipartisan and only reporting the news. he shown them to be a pseudoprofession. it s not a profession at all and shown them also to be is group think of one mind.