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LAKEWOOD RANCH – To honor the birth of his daughter, Kevin Swan had the image of a watch tattooed on his left wrist – hands permanently frozen at 5:27 p.m., the exact time 2-year-old Elliott Monroe Swan came into the world on Feb. 21, 2018.
“It was my first Father’s Day present; it is set to the time Elliott was born,” Kevin, 39, said through an electronic voice that dictates sentences shortly after he finishes crafting them by gazing at specific letters on a tablet.
In February 2012, Kevin was diagnosed with amyotrophic lateral sclerosis. In the years since, the disease – which attacks the nerve cells in the brain and spinal cord – has robbed him of mobility and speech. He breathes with help from a ventilator, eats through a feeding tube and communicates through technology one eye movement at a time.
station from viewers like you. thank you. and by the corporation for public broadcasting. major funding is provided by the john d. and catherine t. macarthur foundation, committed to building a more just, verdant and peaceful world. and by reva and david logan, journali as thguardian of the public interest. additional funding is provided by the park foundation, dedicated to heightening public awareness of critical issues. and by tfrontline journalism fund, with a grant from the brian a. mccarthy foundation. major funding for this program is provided by the ford foundation and by the m a c aids fund. arrator: hollywood, california. december 1. (din of large crowd) there are a lot of red carpet galas in this town, but this one is different. (applause) this has been a remarkable journey. today is world aids day and today in america 152 people will become infected with hiv. half of them will be black. today in america, two thirds of the new hiv cases among women will be black.
me. and she hit me upside my head and, uh, she said, no, we re gonna beat this together. tonight, the dramatic story of how a disease took hold. if black america were a country unto itself, it would have the 16th worst aids epidemic in the world. and the challenge for the future. ending the epidemic is entirely within our power. but we have to have courage. we ve been at this for 30 years, and we need to be talking about endgame. frontline is made possible by contributions to your pbs station from viewers like you. thank you. and by the corporation for public broadcasting. major funding is provided by the john d. and catherine t. macarthur foundation, committed to building a more just, verdant and peaceful world. and by reva and david logan, committed to investigative journalism as the guardian of the public interest. additional funding is provided by the park foundation, dedicated to heightening public awareness of critical issues. and by tfrontline journalism
if black america were a country unto itself, it would have the 16th worst aids epidemic in the world. and the challenge for the future. ending the epidemic is entirely within our power. but we have to have courage. we ve been at this for 30 years, and we need to be talking about endgame. frontline is made possible by contributions to your pbs station from viewers like you. thank you. and by the corporation for public broadcasting. major funding is provided by the john d. and catherine t. macarthur foundation, committed to building a more just, verdant and peaceful world. and by reva and david logan, committed to investigative journalism as the guardian of the public interest. additional funding is provided by the park foundation, dedicated to heightening public awareness of critical issues. and by tfrontline journalism fund, with a grant from the brian a. mccarthy foundation. major funding for this program is provided by the ford foundation and by the m a c aids fun
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