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Ben Griffiths
But the family cannot obtain it on the NHS, so they now have to battle to find a staggering £2,100 for a monthly private prescription.
It is reported Mr Johnson has agreed to meet with two MPs about the issue after a cross party group of more than 100 MPs signed a letter to the PM on April 13 asking him to look at the issue.
The letter said: “We write to urge you to intervene in the ongoing crisis surrounding lack of NHS access to life transforming whole plant extract medical cannabis for a number of children with severe drug resistant epilepsy.