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Walking, swimming to help twins with rare disease

11-year-old Len and Jacob Galea recently diagnosed with Zellweger syndrome

Len and Jacob: the 10-year-old twins who were undiagnosed for six years

On June 3, three friends will run, swim from Ċirkewwa to Valletta to raise funds for them

Fundraising activity in aid of boys with rare condition

A fundraising run/swim challenge in aid of twin boys with a rare condition is taking place tomorrow from Mosta to Ċirkewwa. Like other children their age, nine-year-old Len and Jacob love adventure but a physical impairment limits them from enjoying life to the full. Their condition impedes their coordination and motor skills and requires vigorous therapy, that includes hippotherapy and hydrotherapy. Their parents have set up a Facebook page to help raise funds to cover the costs involved. Tomorrow’s event will see the boys’ father, football player turned multi-sport athlete Brian Galea, together with athletes Nathalie Briffa Farrugia and Karl Cortis running from Rotunda Square in Mosta at 4am to Ċirkewwa, then swimming to Mġarr harbour and running to Ta’ Pinu basilica, where they expect to arrive at 10am.

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