faith. i can be certain that god listens to you and me. faith that she will be in a better place when her time comes and we can go join her some day and this will pass away. what do you want people to remember about juliana? her heart. she is just so much love. so much love. so sad. elizabeth joins us now. juliana talks about what she thinks heaven will be like. her mother says that what they discussed is that in heaven she won t be in a wheelchair and she will be able to run around outside and play and eat, none of which she can do right now. and her doctors are supportive of their decision? they are. all are supportive of the
time with mommy and daddy. i understand. juliana said she hated the hospital. you stick a tube on a suction machine and stick it up the nose and down into the throat and you start suctioning. if given the choice of me or one of the respiratory techs she asks for me to do it. was that hard to do? yeah. could you watch her go through that again? would it save her life to do it again? i don t think so. michelle and steve say when the time comes they ll honor their daughter s wishes to die at home and go to heaven over go to the hospital. some parents wouldn t have consulted a child so young. you asked your daughter at the age of 4, what do you think? juliana had to go through
imagine your child is sick and doctors cannot cure her and she told you she wanted to go to heaven. would you honor her wish? what if she was just 5 years old? what princess are you today? cinderella? juliana snow has a disease that is slowly taking her life. she can t walk or breathe on her own or use her hands to play with glitter. there is no such thing as too much. no such thing as too much. the next time she gets a cold or any infection her body will be too weak to fight it off. what do the doctors tell you is likely to happen if she were to get another cold. she will most likely die. juliana s doctors presented her parents with two devastating option, juliana could die at home in her pink princess room