Help arrives as New Jersey now has Rare Disease Advisory Council mybeachradio.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from mybeachradio.com Daily Mail and Mail on Sunday newspapers.
Senator Kean s legislation, (
S-2682) was approved Tuesday by the Senate Health, Human Services and Senior Citizens Committee and would, upon further approval, ensure that anyone suffering from unusual conditions receive suitable care by establishing the New Jersey Rare Disease Advisory Council.
“The ongoing pandemic makes it more vital than ever to help those who are impacted by rare illnesses that are often difficult to diagnose and treat,” Senator Kean (R-21) said in a statement. “Genetic mutations are responsible for causing many of these ailments that can be passed down through generations, often resulting in suppressed immune systems or respiratory problems for patients. This makes them especially vulnerable to COVID and its life-threatening effects.”
Committee Advances Benson & Verrelli Bill Establishing New Jersey Rare Disease Advisory Council January 14, 2021, 6:37 pm | in
Committee Advances Benson & Verrelli Bill Establishing New Jersey Rare Disease Advisory Council
Bipartisan Legislation Heads to Assembly Speaker
(TRENTON) – In an effort to better understand the unique issues that affect New Jersey residents living with rare diseases, Assemblymen Daniel Benson and Anthony Verrelli sponsor legislation that would establish a New Jersey Rare Disease Advisory Council.
Rare diseases are defined as those affecting fewer than 20,000 people. An estimated 25 to 30 million Americans are living with one or more of 7,000 different rare diseases – many of which are genetic.