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TS Alliance Advocates for Prioritization of Rare Disease Patients and Caregivers for COVID-19 Vaccines

Tuberous Sclerosis Alliance and Nobelpharma to Celebrate Rare Disease Day with New Partnership

Seizure Action Plan Awareness Week Scheduled for February 8-14

Tuberous Sclerosis Alliance. The campaign is underwritten by presenting sponsor Neurelis, Inc. with generous supporting funding from UCB, Inc. SAP Week will highlight the need for people with epilepsy to have a conversation with their healthcare providers, especially if they are in a key subgroup who would benefit from a seizure action plan like those who have intractable epilepsy syndromes, who are at high risk for seizure clusters, status epilepticus or have frequent nocturnal generalized tonic-clonic seizures, said Dr. Tracy Dixon-Salazar, LGS Foundation Executive Director.  SAP Awareness Week features a social media campaign and new website designed to highlight the need for people with epilepsy, their caregivers and healthcare providers to develop detailed plans, especially should an emergency occur. The social media campaign incorporates the hashtag #SAPAW2021 and urges people to learn more at SeizureActionPlans.org.