Audit rips apart Florida program created to aid brain-damaged kids modernhealthcare.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from modernhealthcare.com Daily Mail and Mail on Sunday newspapers.
by Carol Marbin Miller and Daniel Chang, Miami Herald
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Investigating Florida s.
An audit found families got little support from NICA, a program set up to help care for brain-damaged kids. A Miami Herald/ProPublica investigation previously showed that NICA amassed a fortune while arbitrarily denying children care.
A neonatal intensive care unit. (Brad Greenlee/Flickr)
A birth gone horribly wrong left Jasmine Acebo with profound brain damage and a bleak future, one defined by wheelchairs, mechanical airways, feeding tubes, frequent hospitalizations, in-home nursing and constant pain.
Unable to work, her overwhelmed mother became dependent on food stamps and sometimes cash assistance. She watched helplessly when her newborn convulsed with seizures. She saw her daughter turn blue and nearly suffocate during a feeding.
A Florida program promised help: medical care, money for expenses a lifeline of support.
But that help, said Yamile “Jamie” Acebo, was often delayed, denied or deficient. And it included what she viewed as a shameful suggestion from a program administrator making a home visit: Would Acebo wish to place her daughter in an institution? The thought of Jasmine, surrounded by strangers and not the mother who loved her, was horrifying.
When Births Go Horribly Wrong, Florida Protects Doctors and Forces Families to Pay the Price propublica.org - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from propublica.org Daily Mail and Mail on Sunday newspapers.