UAE businessman donates Dh1m to Al Jalila Children s Speciality Hospital in Dubai gulfnews.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from gulfnews.com Daily Mail and Mail on Sunday newspapers.
UAE: Sheikh Mohammed s Dh8m help saves Iraqi baby s life
One-year-old Laveen receives the world s most expensive therapy in Dubai
“It is a day that made us truly speechless, we cannot say or explain how we feel now, but it was not a dose of treatment it was hope for all of us,” Iraqi national Ibrahim Al Jabar, the father of Baby Laveen, told Khaleej Times.
Laveen suffers from a rare and fatal genetic disease called spinal muscular atrophy (SMA). In February, Ibrahim and his wife Massar Mundhar posted an emotional video, pleading for help as they learnt that the one-time injection that would save their baby’s life was the ‘world’s most expensive therapy’. The drug, called Zolgensma (AVXS-101), cost Dh8 million.
World’s most expensive gene therapy
The compassionate gesture will provide the little girl a complete reversal of her genetic condition with what is the world’s most expensive gene therapy worth Dh8 million.
The toddler, Laveen Jabbar Al Kutyashi, was diagnosed with Stage II Spinal Muscular Dystrophy (SMA), a genetic condition that delays motor development. Her condition would have progressively deteriorated without this one–time life-saving injection that can cure her SMA and reverse the symptoms so far.
Mother in desperate appeal
The parents of the little child cannot thank Sheikh Mohammed enough for covering the cost of treatment of their beloved daughter. Shaikh Mohammad was moved by the plight of the child when he watched a video posted by Laveen’s mother on social media appealing for help.
Al Jalila Children’s and Emirates Autism Society Partners to support Children with Autism
23 Dec, 2020
Al Jalila Children’s Speciality Hospital, the only hospital specialized in paediatric medicine in the United Arab Emirates and the Emirates Autism Society have inked a partnership to support the children with Autism and their families.
According to the scoop of the Memorandum of Understanding, signed at Al Jalila Children’s, the two parties will exchange expertise related to the Autism Spectrum Disorder, raise awareness of the disorder, and provide support to children with autism and their families through several initiatives including a parenting program and community events, workshops and seminars.