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Spare a thought for patients with rare diseases

Plight of patients with rare diseases: They are being undone by misdiagnosis, lack of awareness, and limited treatment options

Iraboti roySumona monzurJakia abedinAnisur rahmanMyasthenia gravisPlight of patients with rare diseasesPatients with rare diseasesAre and genetic diseasesAngladesh public health sectorBangladesh healthcare systemDirectorate general of health services dghsPublic and private hospitalsDelayed diagnosisOctors lack of awarenessLimited treatment optionsYasthenia gravis disease

The unheard plight of those with rare diseases

In 2014, Iraboti Roy, 40, a patient with the disease Myasthenia Gravis, died a day after a doctor in the country’s top neurological hospital used a sedative on her.

Iraboti roySumona monzurShashanka baran royAnisur rahmanJakia abedinAhmedul kabirHealth servicesBangabandhu sheikh mujib medical universityBangladesh myasthenia gravis patients societyMyasthenia gravisMohammad hosenProf ahmedul kabirDirectorate general

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