ELLISBURG — In December 2020, while the world was trying to come to terms with the COVID-19 pandemic, Jada R. Ormsby was coming to terms with something even more difficult
ELLISBURG — In December 2020, while the world was trying to come to terms with the COVID-19 pandemic, Jada R. Ormsby was coming to terms with something even more difficult
ELLISBURG â On a quiet Friday afternoon earlier this month, two young cousins played in their grandmotherâs house, giggling the hours away as they waited for her famous meatballs to be ready.
Adeline and Penelope, who are the best of friends, talked about their favorite animals â everything from unicorns to puppies â and spent their time enjoying each otherâs company, paying no mind to Adelineâs physical limitations. Penelope Q. Ray, also 7, describes Adeline as âfunny, cute and the best person in the whole wide world.â
Born with a congenital heart defect, basically five separate heart defects in one diagnosis, Adeline R. Ormsby at just 7 years old has had two open heart surgeries already. With this heart defect, thereâs also a chromosomal deletion, a micro-deletion of a piece of her 22nd chromosome. It may be tiny, but it could affect more than 200 things throughout her body â every body system. In addition to severe heart problems