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Shedding light on rare diseases: open data and model organisms

Shedding light on rare diseases: open data and model organisms
miragenews.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from miragenews.com Daily Mail and Mail on Sunday newspapers.

Western australiaUnited kingdomMelissa haendelKaren arnottGareth baynamRare care centreInterdisciplinary scientific committeeMonarch initiativeUniversity of colorado anschutz medical campusEuropean commissionDisease programmeNational health serviceWorld health organisationEuropean joint programme on rare diseasesInternational mouse phenotyping consortiumInternational rare diseases research consortium

Medical devices for rare diseases: the unmet need

Patients with rare diseases often lack medical devices suitable for their condition, a problem that a new working group aims to address.

Abi millarAnneliene jonkerUniversity of twenteDevice networkInterdisciplinary scientific committeeEuropean unionInternational rare diseases research consortium irdiTherapies scientific committeeRare diseaseOrphan drugs actInternational rare diseases research consortiumMedical device networkAutomated sample preparationBiological samplesLife sciencesPlastic components

Colombian woman finally granted euthanasia procedure

Just one day after Víctor Escobar became the first non-terminal patient to die through euthanasia in Colombia following a long legal battle, the 51-year-old Martha Sepúlveda followed suit. She suffered from amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig s disease.

New zealandLou gehrigMartha sepColombian institute of painConstitutional courtInterdisciplinary scientific committee for the right toColombian instituteInterdisciplinary scientific committee

Colombian judge orders that non-terminally ill woman must be permitted euthanasia

Colombian judge orders that non-terminally ill woman must be permitted euthanasia
catholicworldreport.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from catholicworldreport.com Daily Mail and Mail on Sunday newspapers.

La guajiraMartha liria sepBishop francisco ceballosInterdisciplinary scientific committeeCivil circuit courtColombian pain instituteCatholic churchMinistry of healthInterdisciplinary scientific committee for the right toCommission for the promotionSocial protectionFrancisco ceballosColombian bishopSupreme loveCatholic world report

Euthanization of non-terminally ill Colombian woman canceled

Euthanization of non-terminally ill Colombian woman canceled
catholicworldreport.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from catholicworldreport.com Daily Mail and Mail on Sunday newspapers.

La guajiraMartha liria sepBishop francisco ceballosColombian pain instituteMinistry of healthCatholic churchInterdisciplinary scientific committee for the right toCommission for the promotionInterdisciplinary scientific committeeSocial protectionFrancisco ceballosColombian bishopSupreme loveCatholic world report