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Date Time Researchers Use Big Data to Assess Seizure Burden and Improve Outcomes in Pediatric Epilepsy Patients Researchers at Children’s Hospital of Philadelphia (CHOP) have demonstrated how to use standardized reporting of clinical data for seizures caused by a variety of neurological disorders, providing fundamental baseline information that can determine what methods work best for keeping seizures under control. The findings were published today in the journal Epilepsia. In order to make improvements in epilepsy care, clinicians need a reliable and efficient method to measure outcomes. While Electronic Medical Records (EMR) are being used more frequently for research and quality improvement, important epilepsy outcome measures such as seizure frequency or quality of life are not documented in a standardized way that enables researchers to process large-scale data on the subject.

University of pennsylvaniaUnited statesMarkp fitzgeraldIngo helbigInternational league against epilepsyTransdisciplinary program in translational medicineResearch unitDevelopmental disabilities research centerHuman developmentNational centerEpilepsy neurogenetics initiativeInstitute for translational medicineResearch centerCenter without wallsBiomedical research awardGerman research foundation