Coordinated database must to treat rare diseases: Experts
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Mariecar Jara-Puyod,
Senior Reporter
The socio-economic impact of rare diseases which regional medical experts claim, affect 2.2 million children of the 2.97 million afflicted in the Middle East, is resolvable by way of a multi-sectoral collaborative approach.
Through a multi-sectoral collaborative approach, it is hoped that a well-organised and coordinated, national to regional constantly updated rare diseases database is achieved, towards the realisation of implementable country to region-wide policies. This calls for the active participation of and cooperation among policy makers, doctors and nurses, educators, non-government organisations, support groups and the pharmaceutical industry. Awareness campaigns as well as continuous research and development for therapeutics and advanced evidence-based scientific remedies are seen as solutions.
Patient Safety Watchdog The Leapfrog Group Funded for National Initiative on Preventing Harm from Diagnostic Error
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WASHINGTON, Jan. 28, 2021 /PRNewswire/ The Leapfrog Group, a national watchdog organization of employers and other purchasers focused on patient safety and quality, today announced
Recognizing Excellence in Diagnosis
, a new national initiative to publicly report and recognize hospitals for preventing patient harm due to diagnostic errors. Developed in collaboration with The Society to Improve Diagnosis in Medicine (SIDM) and key experts, the project is funded with a two-year grant of $1.2 million by the Gordon and Betty Moore Foundation.
Society to Improve Diagnosis in Medicine Launches Two New Quality and Safety Resources
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The Society to Improve Diagnosis in Medicine (SIDM) has released a new online toolkit to support diagnostic quality and safety researchers in developing patient-centered comparative effectiveness research (CER) and an interactive Diagnostic Process Map to support education about the diagnostic process as conceptualized by the National Academies of Sciences, Engineering, and Medicine (National Academies) in a consensus report, Improving Diagnosis in Health Care.
“Diagnostic errors continue to persist as a serious challenge to deliver high quality care, and I’m hopeful these resources from SIDM will translate into meaningful improvements in patient care and outcomes, said John R. Ball.