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Stacey Schmidt, a former Rockhampton Girls Grammar School student, wears silver ring-like devices on her fingers which, at first glance, look like some form of punk jewellery.
They are, in fact, finger splints which reduce the hyperextension and pain associated with her rare, genetic and chronic condition.
Ahead of Hypermobile Ehlers-Danlos Awareness Month in May, Ms Schmidt told the story of her diagnosis to
The Morning Bulletin.
What followed were three years of what she described as a “traumatic” journey.
The initial diagnosis of an iron deficiency did little to explain Ms Schmidt’s multitude of symptoms which impacted virtually every system and organ in her body.