These two videos were developed to support participant understanding and engagement in our national online community attitudes survey. Video one presents: information on the types of information captured in a general practice record, introduces privacy laws and explains identifiability. Video two presents: using general practice data for research purposes, the roles of Human Research Ethics Committees, and details several safeguards used in research projects. This project was supported by Digital Health CRC Limited (DHCRC). The Digital Health CRC Limited is funded under the Commonwealth's Cooperative Research Centres (CRC) Program.
Shiraz Badurdeen and colleagues evaluate whether physiologically-based cord clamping provides physiological benefits over early cord clamping for infants requiring resuscitation at birth.
The South African Khoe-San communities are no strangers to exploitative research. One research team is trying to provide genetic ancestry results to community members. But they still face many challenges.