HudsonAlpha Institute helps families like the Monsons find answers to rare genetic disorders.
Posted: Apr 1, 2021 6:02 PM
Posted By: Pat Simon
Nothing seemed out of the ordinary, until her mother Mandy began noticing changes.
“She totally just felt almost like a rag doll, recalled Mandy.
Violet became weak. She didn’t make much of an effort to move. Or later even speak.
That’s when Mandy took Violet in for what she hoped would be a routine medical checkup.
But, they didn t get any answers. Her doctor referred her to another specialist who confirmed that the Monson’s needed to pursue further testing to see what might be going on.
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