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Transcripts For CSPAN2 Hearing 20240702

Two hours. [background noises] [background noises] good morning the Senate Special committee will come to order welcome everybody. Welcome to the committees eighth hearing of the one her 18th congress about Drug Development for rare and serious diseases. As is the tradition of the committee, the aging Committee Ranking member, Ranking Member brought in this case will offer an opening statement. Thank you, senator. Thank the witnesses for coming and for all of the folks from around the country here today. There are over 7000 rare progressive and serious diseases known to man. It is estimated 95 black treatment. Yet in my time et cetera there is not been one Senate Hearing to examine promising therapies for people with rare progressive and serious diseases. The room is packed with people, patients and caregivers that live in this reality every single day. Right here, 350 patient stories from 44 states. This is long overdue. People that watch their bodies deteriorate in real time. Family

Transcripts For CSPAN2 Hearing 20240702

Patients with Rare Diseases. Advocates for medical ethics and a therapeutic industry professionals also testified to provide insight on the fda Clinical Trial process. This hearing before the Senate Special Agent Committee is about two hours. [background noises] [background noises] good morning the Senate Special committee will come to order welcome everybody. Welcome to the committees eighth hearing of the one her 18th congress about Drug Development for rare and serious diseases. As is the tradition of the committee, the aging Committee Ranking member, Ranking Member brought in this case will offer an opening statement. Thank you, senator. Thank the witnesses for coming and for all of the folks from around the country here today. There are over 7000 rare progressive and serious diseases known to man. It is estimated 95 black treatment. Yet in my time et cetera there is not been one Senate Hearing to examine promising therapies for people with rare progressive and serious diseases. Th

Lots of drug companies talk about putting patients first — but this one actually did

Lots of drug companies talk about putting patients first — but this one actually did
wcbe.org - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from wcbe.org Daily Mail and Mail on Sunday newspapers.

Lots of drug companies talk about putting patients first — but this one actually did

Lots of drug companies talk about putting patients first — but this one actually did
wbaa.org - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from wbaa.org Daily Mail and Mail on Sunday newspapers.

Maker of ALS drug pulls Relyvrio off the market, keeping a promise to patients : Shots

Maker of ALS drug pulls Relyvrio off the market, keeping a promise to patients : Shots
npr.org - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from npr.org Daily Mail and Mail on Sunday newspapers.

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