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New strategy to accelerate diagnosis and improve treatment of rare diseases The new framework will raise awareness of rare diseases, speed up diagnosis and improve care and treatment. From: 9 January 2021 Rare Disease Framework sets out vision to improve the lives of more than 3.5 million people with rare diseases in the UK The framework will speed up diagnosis, increase awareness and improve treatment and care The new strategy has been designed around the views and experiences of those living with rare diseases Millions of people with rare diseases, like Huntington’s disease or cystic fibrosis, will benefit from a new framework to raise awareness of rare diseases, speed up diagnosis and improve care and treatment.

Northern irelandUnited kingdomJayne spinkMatt hancockHaseeb ahmadEhlers danlosGenetic alliance united kingdomNational conversation on rare diseasesRare disease frameworkUnited kingdom rare diseases frameworkNational conversationSocial care secretaryLord bethellUnited kingdom rare diseaseRare diseasesBaroness blackwood