Two Lloydminster residents rallying support around child’s rare disorder treatment
SHARE ON: Max Sych was diagnosed with Spinal Muscular Atrophy type 2 in November 2020. A treatment option, Zolgensma, is available in the United States for $2.8 million and must be administered to the child before he turns two years old. (Supplied Bowden Sych, GoFundMe)
A Fairview toddler needing a life-altering gene therapy is getting a helping hand from people across the province here in Lloydminster.
Max Sych, who has the affectionate nickname Mighty Max, was recently diagnosed with Spinal Muscular Atrophy type II. A rare neuromuscular disease in the part of the nervous system controlling voluntary muscle movement, people with SMA Type II will experience difficulty walking, sitting up on their own, swallow or breathe.