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Oakland Gardens couple funds critical research to find a cure for 3-year-old son diagnosed with rare disease – QNS com

In March 2021, when Gurjot "Jo" Kaur and Richard DiGeorge of Oakland Gardens found out their 15-month-old son, Riaan, was diagnosed with Cockayne Syndrome,

Richard digeorgeRita batistaGurjot jo kaurGurjot kaurMiguel sena estevesNational organization for rare disordersRiaan research initiativeChan medical schoolTranslational institute for molecular therapeuticsOakland gardensCockayne syndromeNational organizationCockayne syndrome typeMedical schoolTranslational institute

We have already achieved the impossible : Fighting a rare childhood disease with hope

(RNS) A civil rights activist becomes an advocate for solving her son’s affliction.

United statesRita batistaMiguel sena estevesGurjot jo kaurHar krishan jiRichard richie digeorgeGobind singh jiRiaan research initiativeHorae gene therapy centerUniversity of massachusetts chan medical schoolCockayne syndromeGuru nanak devAfter riaanTalk about miceTower defenseMassachusetts chan medical school

Activist Jo Kaur Fighting for Her 15-month-old Son s Life; Over $24,000 Raised by GoFundMe | Global Indian

Activist Jo Kaur Fighting for Her 15-month-old Son s Life; Over $24,000 Raised by GoFundMe | Global Indian
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United statesGurjot jo kaurMinou kaurJo kaurIndian american sikhSikh feministஒன்றுபட்டது மாநிலங்களில்குர்ஜோட் ஜோ காயார்ஜோ காயார்இந்தியன் அமெரிக்கன் சீக்கியர்சீக்கியர் பெண்ணியவாதி

NRI activist fights for son s treatment

For New York-based activist and lawyer Gurjot “Jo” Kaur, a recent diagnosis for her 15-month-old son came as a life-changing blow. Riaan was diagnosed with a rare neurodegenerative disorder. The fatal disease is extremely rare and affects just about 100 children in the United States every year, leaving them with an average life expectancy of 3 years to 5 years. Kaur, popularly known on Twitter as Sikh Feminist, has been an active civil rights campaigner. Kaur is known within the community for creating many groundbreaking policies and laws promoting equality and justice in the United States. She also represented the first Sikh to testify before the US Senate……..Read More

United statesGurjot jo kaurUs senateFor new york basedSikh feministஒன்றுபட்டது மாநிலங்களில்குர்ஜோட் ஜோ காயார்எங்களுக்கு செனட்க்கு புதியது யார்க் அடிப்படையிலானதுசீக்கியர் பெண்ணியவாதி