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By StoryStudio July 1, 2021 4:29 am
(BPT) – Grace is a gift. At eight years old, her infectious exuberance for life flashes in her big brown eyes and cheeky smile. She’s also a warrior. You would never know that at just six months old Grace was having hundreds of seizures per day. Her mother, Gloria, a fighter in her own right, has worked tirelessly to find answers to the medical questions that might help her daughter experience fewer seizures.
Grace has Dravet syndrome, a rare and severe form of epilepsy that usually begins within the first year of life. A 2015 study estimates the condition affects up to 1 in 16,000 infants born in the U.S.[1] It is a lifelong, debilitating disease involving frequent and prolonged seizures that can dramatically impact a child’s development. Problems stemming from the condition can range from language and speech issues, difficulty with balance and movement, to chronic infections[2].
The Grace It Takes—Living with Dravet Syndrome - Story Studio – SeattlePI
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The Grace It Takes—Living with Dravet Syndrome - Story Studio – MySanAntonio com
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The Grace It Takes—Living with Dravet Syndrome
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