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Page 7 - Gervais Syndrome News Today : Breaking News, Live Updates & Top Stories | Vimarsana

CNN Death Row Stories March 16, 2014 06:05:00

constant, and started to take their toll on their once happy, joyful little girl. she started to really decline, cognitively. and she was slipping away. and she just wasn t keeping up with her twin. they finally found an answer, and it was awful news. gervais syndrome. it is severe intractable epilepsy. the seizures start during the first year of life and are unstoppable, difficult to control, and very damaging. severe behavioral problems. attention deficit and hyperactivity. the self injury, banging her head on the floor and pulling her hair out. like a possessed child. this isn t your happy charlotte. it was a race against time. many gervais kids die young, in early childhood. charlotte was almost 3. for the next two years, the figges tried everything. strange diets, acupuncture, and dozens of powerful drugs like valium, ativan, phenobarbital, but nothing seemed to help.

CNN Death Row Stories March 16, 2014 06:59:00

remarkable to see her progress. in the three months since we first met her, we saw a change. she was now talking more. say puppy. puppy! yay! she s horseback riding. good girl. she even rides a bike on her own. and the special strain made for charlotte is now named for her. it s charlotte s web. it is charlotte s plant. it s charlotte s plant. not anymore. now it s for all the children. more than 41 children are using charlotte s web here in colorado. all of them are reporting significant seizure reduction, and there are dozens more on a wait list hoping, praying that a plant could change their lives. just like it did for charlotte. i m going to get you. you both seem very at peace. i m very at peace, yeah. very peaceful. we ve been given a great life. it s unfortunate that charlie has this gervais syndrome, but

CNN CNN Special March 16, 2014 09:05:00

their toll on their once happy, joyful little girl. she started to really decline, cognitively. and she was slipping away. and she just wasn t keeping up with her twin. they finally found an answer, and it was awful news. gervais syndrome. it is severe intractable epilepsy. the seizures start during the first year of life and are unstoppable, difficult to control, and very damaging. severe behavioral problems. attention deficit and hyperactivity. the self injury, banging her head on the floor and pulling her hair out. like a possessed child. this isn t your happy charlotte. it was a race against time. many gervais kids die young, in early childhood. charlotte was almost 3. for the next two years, the figges tried everything. strange diets, acupuncture, and dozens of powerful drugs like valium, ativan, phenobarbital, but nothing seemed to help. even worse, some of the

CNN Unguarded With Rachel Nichols March 15, 2014 05:47:00

marijuana. achoo. after almost two years on a feeding tube, she was now eating on her own. yellow. she was talking. even walking. please. she said please. but these stories, they are not without their skeptics. one of the country s two hospitals dedicated to gervais syndrome in florida states at present there is no evidence that cannabidiol is effective for the treatment of epilepsy. the american academy of pediatrics also opposes cannabis as does the national institute on drug abuse. it is such an amazing turn of events that it really can t be a fluke, but i do still wonder. do you still wonder too, matt? hell no. you know it s working? it s working great. you just look wonderful. and charlotte s doctor, alan shackelford, also agrees.

CNN To Be Announced March 15, 2014 07:05:00

constant, and started to take their toll on their once happy, joyful little girl. she started to really decline, cognitively. and she was slipping away. and she just wasn t keeping up with her twin. they finally found an answer, and it was awful news. gervais syndrome. it is severe intractable epilepsy. the seizures start during the first year of life and are unstoppable, difficult to control, and very damaging. severe behavioral problems. attention deficit and hyperactivity. the self injury, banging her head on the floor and pulling her hair out. like a possessed child. this isn t your happy charlotte. it was a race against time. many gervais kids die young, in early childhood. charlotte was almost 3. for the next two years, the figges tried everything. strange diets, acupuncture, and dozens of powerful drugs like valium, ativan, phenobarbital, but nothing seemed to help.

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